Frequently Asked Questions
If you’re new to my work—or just curious—this FAQ brings together the most common questions about my writing, chronic illness and disability advocacy, the What’s Her Problem? newsletter and podcast, and the services I offer through The Open Hearted Advocate. It’s a quick way to learn what I do, why I do it, and where to find more.
Chronic illness, disability, patient advocacy, and the lived experience of navigating complex medical systems and conditions.
My Substack newsletter featuring essays, interviews, opinion pieces, and more. Every Friday, I tackle issues at the heart of chronic illness and disability. Audio versions are also available through the What’s Her Problem? Podcast.
Hypertrophic Cardiomyopathy (HCM), living with an implanted cardiac device (ICD/pacemaker/defibrillator), autoimmune sensory neuropathy, Lyme, and osteoporosis, as well as chronic illness identity and disability culture more broadly.
Yes — the What’s Her Problem? Podcast is available on all of your favorite podcast platforms.
Yes — visit my Contact page.
Yes — visit my Contact page.
Yes, a memoir about my Hypertrophic Cardiomyopathy (HCM) diagnosis and long struggle to accept that I needed open heart surgery.
Yes. Through The Open Hearted Advocate LLC, I offer writing, speaking, podcasting, brand partnership, and advocacy services.